Wednesday, December 28, 2011

Christmas 2011

Davis learning to walk behind the awesome car that Zach and Katie got him for Christmas

Having fun opening gifts

Meeting the horses

Trying out uncle Jason's new headphones

Friday, December 23, 2011

We have a date

We got a call from Dr. Dearani's office and Davis's heart surgery is scheduled for Wed, January 18th.  We're gearing up for the trip, the surgery and everything that goes along with it.  Thank you for all your prayers and warm wishes. 

Meanwhile, we're preparing for Davis's first Christmas and are getting in the holiday spirit.  He seems to love all the twinkling lights and festive music.  Davis is such a trooper and truly doesn't seem to be acting any differently despite his large heart.  He's still in love with his O2 cord and is excited about tasting all sorts of new foods.  So far, blueberry yogurt is his favorite but he also loves all veggies he's tried so far as well.  The thing he hates most is apple sauce, which seems so strange to me, but I think it's more about the consistency than the flavor.  We'll just keep trying new things. 

Merry Christmas to everyone and a very happy new years.  2012 may just be our best year yet...with our heart healthy, happy, handsome baby boy.

Enjoying an asparagus snack

Playing with his O2 cord

Monday, December 19, 2011

It's GO Time.

Well, we got the official call today that Davis needs his valve surgery in January. His heart is getting larger and the cardiologists here in Denver think it's time. Best to go into surgery while he's healthy, before things start to go bad. So the process has been started and we're just waiting for the surgery date next week from the Mayo Clinic in MN where it will be done.
I have mixed emotions about all this happening so soon.  On one hand it's great that he's made it so far without any surgical intervention and he's certainly better prepared now than he would have been in his first few weeks of life.  And he's getting the cone surgery; done by Dr. Dearani at Mayo, which is what we've always hoped for and will in effect "fix" his heart, so that's all great news.  But he's still so small and vulnerable that it scares me a lot.  They've done this surgery on infants before, but always say it's preferable to do it when kids are a bit older (2-9 years old) since their hearts are larger.  But we are in the best hands possible and i can't help but feel that we're doing all we can and the rest is out of our hands.  So please keep us in your thoughts and prayers mid-January. 
Video of Dr. Dearani talking about Ebstein's Anomaly