Tuesday, November 8, 2011

Davis-1, Oxygen-0

Today calls for a celebration!  We had an appointment with Davis's cardiologist and she gave us the OK to take him off the oxygen.  We are thrilled with this good news and Davis seems to LOVE not having the cannula on his face anymore.  At the appointment, they did an echo scan and an EKG and all looked great.  His right atrium is still very large, and they'll keep an eye on it over the next few years, but it's no larger than before.  About 3 weeks ago, Dr. Jone called me with an idea.  She had been looking at some recent studies about infants in the NICU who were on Sildenaphil (viagra) to increase blood flow to the right side of their heart and had great success.  There was no mention of 7-8 month olds using this drug, but she consulted with the team of cardiologists at Children's Hospital and they thought it may work for Davis.  So we've had him on this drug for about three weeks now, and today was the official evaluation on how it was working.  His blood oxygen levels are staying over 90 off the oxygen, so she said he didn't need it anymore.  :)  We'll keep the tanks and machine at the house just in case he needs it at night or when we take him into the mountains, but he definitely won't need it anymore during the days in Denver.  We're so proud of his continued progress and ability to conquer every hurdle he's given.  What an amazing little boy we have.


Anonymous said...

He is truly a special boy...such a fighter. How could you not smile looking at that precious face.
Love the "do".

Aunt Dee said...

Davis you are such a trooper, fighter and such a special angel from heaven. You have touched so many people on your journey, especially me. Love you soooo much - Aunt Dee

Theresa Wagner said...

This is wonderful news! I'm so happy to hear he is doing well. :)